Alfie Evans, the 23-month-old precious son of Kate James and Tom Evan, had been in a coma for well over a year after being struck down with a mystery illness.
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He began making “jerking, seizure-like movements” and was taken to the doctor, where his parents were told he was “lazy and a late developer”, says the family.
He caught a chest infection that caused seizures and was placed on life support at Alder Hey Children’s Hospital in Liverpool in December 2016.
After being admitted to Alder Hey, his parents were told he wasn’t going to make it – but he fought back to beat the infection and started breathing on his own. He caught another chest infection and was placed back on a ventilator when he began having more chronic seizures.
Experts believe he may have a mitochondrial condition – the same as Charlie Gard.
Mitochondrial DNA depletion syndrome (MDS) refers to a group of disorders that cause affected tissues to suffer from a significant drop in mitochondrial DNA.
The DNA is found in the mitochondria of cells – an organelle found in most cells in which respiration and energy production occur.
This means, as in Charlie’s case, that sufferers do not get the energy to their muscles, kidneys, and brain.
MDS causes progressive muscle weakness and brain damage. The condition is rare and Charlie is said to be one of only 16 people to have ever had the condition.
MDS is almost always fatal in babies and young children, although some sufferers have made it into their teenage years.
There is currently no cure but some treatments have shown a reduction in symptoms.
One of these is Nucleoside bypass therapy.
Alfie’s parents constantly placed pressure on the justice system trying to keep their son alive.
Tom cited the 10 commandments in a court case, reminding the court “thou shalt not kill”.
Following the rejections by the judges in the European Court of Rights, Tom said he and Kate were “in bits, distraught, in pain”, and the decision meant their son was “about to be murdered”.
The family took their battle to the Supreme Court after the Court of Appeal agreed with Alder Hey that Alfie “could not be saved” and that it would be “unkind” and “futile” to continue treatment. On April 20, a bid to have the decision overturned was denied.
On Friday, outside Alder Hey hospital, Tom said he was told he could face prison if he removes Alfie from the hospital, and there were police officers on the ward to stop him from taking his son.
Following one appeal, Lord Justice Davis ruled that Alfie’s life support must be turned off and told lawyers that doctors had agreed that there was “no hope”.
He said: “We cannot have a kind of legal Groundhog Day where you come back again and again and again on the same point.”
<blockquote class="twitter-tweet" data-lang="en"><p lang="en" dir="ltr">The fact that Alfie Evans isn't trending either means Twitter is suppressing it or most people really just don't care that a child is being legally starved to death. Neither explanation is encouraging.</p>— Matt Walsh (@MattWalshBlog) <a href="https://twitter.com/MattWalshBlog/status/988889770209234944?ref_src=twsrc%5Etfw">April 24, 2018</a></blockquote> <script async src="https://platform.twitter.com/widgets.js" charset="utf-8"></script>
The last few hours of Alfie Evans story are vile. The precious little boy, who suffered from a mysterious brain condition, was removed from the ventilator at Alder Hey hospital in London. The hospital decreed that the boy’s life was no longer worth living and so he must die. The parents pleaded that there was still hope, and they wanted to take him to a hospital in Italy where further treatment was offered and available. In the end, the doctors at Alder Hey hospital won the right to kill little Alfie.
On April 23rd, they begin the slow, painful process of his execution by removing him from life support. Alfie defied them again as he continued to breathe on his own, without assistance, for several hours. The doctors, perplexed by this, eventually agreed to give Alfie water but no food. Since they could not suffocate him by taking away his oxygen, they would starve him to death.
<blockquote class="twitter-tweet" data-lang="en"><p lang="en" dir="ltr">Alfie’s Dad, Tom Evans - Alfie’s been breathing on his own for 22 hours which has surprised but also frustrated doctors who he says want the child dead. Tom fought for six hours to get Alfie hydration but they're refusing food.<a href="https://twitter.com/hashtag/AlfieEvans?src=hash&ref_src=twsrc%5Etfw">#AlfieEvans</a><a href="https://twitter.com/hashtag/PrayForAlfie?src=hash&ref_src=twsrc%5Etfw">#PrayForAlfie</a><a href="https://t.co/AeqWjBzN4i">https://t.co/AeqWjBzN4i</a></p>— The United Free (Jason Evans) (@TheUnitedFree) <a href="https://twitter.com/TheUnitedFree/status/988917338174033920?ref_src=twsrc%5Etfw">April 24, 2018</a></blockquote> <script async src="https://platform.twitter.com/widgets.js" charset="utf-8"></script>
While all this was going on, an air ambulance from Italy was outside the hospital ready to take Alfie, who was also granted Italian citizenship, to their country for treatment. A small army of police is stationed outside the boy’s room to prevent this from happening.
Alfie’s parents were granted one final hearing with a judge, praying he would have a conscience and the human decency to let them put their sweet son on that helicopter and take him to a place, with open arms, willing to give him medical care. But sadly he showed them no mercy. Their request was denied. The boy must die. This is his “final chapter,” says the judge.
This is pure evil. The hospital held this precious baby hostage against the will of his parents, and the courts barred the family from boarding a helicopter and leaving the country. This is kidnapping and murder.
Who gives the judge the right to decide the final chapter in a young boy's life? Why are the doctors fighting so hard to kill him? It appears they would all rather see Alfie die a slow and agonizing death than risk him getting the treatment he needs from another country and embarrassing them by proving their diagnosis wrong.
That’s their motive for killing little precious Alfie Evans. May God have mercy on their souls.
<b>By: Lexy </b>
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This story breaks my heart. The government should have NO say in how our children are treated if there is a chance of better treatment at a different hospital. How can this be allowed? Excellent article Lexy, you put all the facts of the case in a way all people can understand. Thank you for this, and May God help this precious little boy.
Im sorry but i feel that NO one has the right to tell u as a parent when its time for your child to die.. so so wrong in so many ways and Shame on the courts and the docs.. and anyone else who didnt Stop this from happening.. There would be a lawsuit for sure ..There is NO way In HELL im letting any one KILL my Child.. over my Dead body thats for dam sure.. Shame on U all .. If it was your child im sure u would have done everything u could have to keep him alive..
Human life has dignity because we are created in the image and likeness of God. A diabolical attack on the most vulnerable of human beings has been escalating all over the world. The judiciary has not only ceased to advocate for the vulnerable, it has become the enemy of them. We are witnessing pure evil. We have modern day King Herods in all societies who feel that dignity is a gift of the government and not our creator. This little boy and his family are more victims of this pure evil that has permeated our world. The blood of these innocent angels is crying out to God for justice. Every single public advocate of abortion, euthanasia, and assisted suicide will come before The Almighty and answer for this outrage.
[email protected] believing in God. If we were 'created in the image of God', then your imaginary 'God' must be a real piece of shit. Humans are the most disgusting, cruel, destructive, stupid, inept, worthless, foul pieces of crap in the Universe…
BTW, in this 'article', (crap) the 'genius journalist' LEXY typed , "…I’m the end, the doctors at Alder Hey hospital won the right to kill little Alfie."
"I'M the end", or "IN* the end", Lexy ?…
and what kind of bullshit name is 'Lexy' for a Journalist ?!!!… That's such an unprofessional sounding name. It's not surprising that someone with a Filipino Prostitute's name wouldn't be able to construct a coherent story.
Q: do you think perhaps you should learn how to spell and proofread before pretending that you're a journalist?..
This child belongs to his parents not to the hospital, doctors or government. This is so wrong.
Prayers for poor Alfie first of all. This is what social medicine is… It makes choices for others that they have no business making. That choice should've been the parent's & the parents alone. Go ahead…vote in the democrats…& this may be your own USA child or grandchild.
This article is misleading, disingenuous and to be frank drivel. There is a medical consensus from the leading experts across the world that Alfie has no chance of recovery, the hospital in Italy is offering to perform an invasive, unecessary procedure that they freely admit will do nothing to change the unfortunate outcome of this illness. The court papers clearly outline all of this yet you would rather misrepresent the facts and drive division and hatred. The hospital is representing the interests of Alfie as he is unable to do so, their only concern is doing what is right for the patient. Also to clarify the police are at the hospital because of the imbeciles protesting outside and trying to disrupt the hospital as they care for other patients.
Bullshit, John. irre: The hospital is representing the interests of Alfie as he is unable to do so, their only concern is doing what is right for the patient
You're talking like this is your child. Talk to the parents and snap back to reality.
So the UK Medical Owned and Operated State (Socialized Medical care) stepped in, took over and denied the parents the right to seek treatment for THEIR CHILD. Or has the State (Socialism) became GOD also.
Remember this example story next time O-Care National (Socialized) Medical care rears its ugly head and again.
I don't understand it ?
Judge decides #Alfie's life ? over his parents ?
Hospital stops treating #Alfie ?
Denied transfer to another hospital ?
Everyone wants #Alfie transfered to Rome, except the hospital, doctors and judge.
Are doctors, hospital covering up something ?
Johnny Neptune, why so nasty? Many of us do believe in God. We know all the human sins because we all have them. The good news is Jesus died for our sins. We are saved.
Now, why attack the journalist who wrote this? Were you having a bad day? It sounds like you have a personal vendetta against Lexy. I have a solution for you. Simply don't read her articles. To call her names and criticize simple mistakes show an immaturity that liberals possess. I assume you're a liberal because Conservatives are just nicer people and would not attack someone the way you did. Your comments are mean and vile, but what can I expect from someone who doesn't believe in God?
The person above me is too kind… and Who goes by the name Johnny Neptune anyway?? A dochebag obviously!
Article was written well; albeit a tiny little typo which 97% of us didn’t notice until this TROLL pointed it out.
What is being done to the kid is abhorrent and evil… makes zero sense.
Ignore the haters Lexy and keep providing this great articles please!
This is a horrible situation! I can't believe the court is able to ban these parents from removing their child and taking him for a 2nd opinion. The procedure in Italy could fail, but at least the parents would know they tried everything possible to save their child. How in the world can the judges and medical staff think that starving this child to death is humane? It's outrageous!
If, according to the doctors, there is no hope for this child and they are going to starve him and wait for him to die, why shouldn't they be willing to let his parents take him home to die? Is it ti avoid the possibility that if he were given medical help he could live? What they are doing here is cruel and inhumane and just pure evil! Aperson wouldn't even treat an animal this way, and we're talking about a precious little human being. God, please be with this family.
To Sad and Inhumane behavior, Thank you for calling me kind. I can be a witch if I need to, LOL!
To 2105 Johnny Neptune. I know it's got to be frustrating being close to thirty and still living in you mom's basement. Take your meds, try not to wake up your mom when your using her computer, and yes you'll probably never have any friends. Good luck with that bedwetting problem.
this actually sounds like a medical malpractice case - a misdiagnosis of infant meningitis or something along those line and was mistreated in to a coma
This article is the biggest load of rubbish i have ever read, completely inaccurate and with the sole intent of bending the story to influence people.
Shame on you
The medical community does Not have absolute proof of Alfies diagnoses! Where's the facts of his disease, diagnoses, tests, studies etc? My son was not suppose to live but he has after being in a comma!